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JOURNAL EXERCISE UPDATES AT THE SITE CAREGIVERS' CONCERNS NEWS INFORMATIVE CAREGIVING ARTICLES & INSPIRATION MESSAGE BOARDS & EMAIL BAG JOKES & HUMOR DISCLAIMER NEWSLETTER ARCHIVES Thanksgiving fell so late this year; it feels like we are really on our way into the Christmas/Hannukah Season. Many of you have written about the sadness you are experiencing since this is the first year without your loved ones... some are anticipating that this will be the last season of holidays you may all share together. And some of you are just over-whelmed and exhausted and rightfully so. In the quiet, you can become clearer and more focused on what is really truly important at this time in your life.. and in the midst of all the "busy-ness" you experience remain mindful and aware, so that you can enjoy the present of the present moment. These are the real gifts you can give to yourself and to others.. the gift of love and soulful connection. I always seem to be drawn to the concept that this time of the year, the holidays in all religions are celebrated with lights… and we are all lights, so let us muster up the courage and strength to shine our light and love for ourselves and for others in our lives. Let love touch and warm you; open your heart to receive, just as much as you open it to give. Give yourself permission to replenish your well. You all are doing such incredible work and you deserve all this and so much more. Be the real you.. let your truth shine through; be the gift of light and of love. Wishing you all a Peaceful, Holiday Season... May your journey be gentle and beautiful! For those of you who have listed loved ones in our healing circle at the site, our list keeps growing and growing. In order to keep the names in the circle current, one of our volunteers is developing a database so that when you list the name(s) of those you would like included, it will request your email address etc. Every 3-4 months an email will go out asking you to validate that you would like to have the name remain in the circle or that you would like it removed. If, over the years, you have placed a name of a loved one and more than one name, we would appreciate your emailing us at healingcircle@care-givers.com. This will enable us to keep the circle current and when we no longer can contact the poster due to address changes, these names will be deleted after three months of their initial posting. Once the database is up it will be easier for us to maintain the circle and this information will remain posted at the circle. Thank you for your understanding and support. Help Grow NOFEC This Holiday Season. This past year the growth of NOFEC has relied heavily on our dedicated volunteers and the kindness of caregivers and others who have contributed so generously to our cause. We continue to make our services available free of charge because we believe that caregivers are our true heroes. ~ I would also like to honor all those who have visited us from the following countries this past year. Over 150 countries are represented in our current statistics and it never ceases to amaze me, how the Internet has brought us all closer together, bonding individuals, who have never met in person; from countries some of us have never even heard of. The friendships are exponential and it is truly a gifted blessing that the world has become so small through the maze of the infinite Internet. I feel so blessed, honored and grateful that each of you is a part of our community. Empowering Caregivers Chats Resume After January 1st There are many wonderful changes taking place offline for us as well as online. In an effort to nuture the growth we are undergoing, we will resume our chats after the first of the year. If you would like to volunteer and assist us in hosting please fill in our application at: Chat Host. In the meantime, we are responding to postings at the message boards and this is also an excellent means of communicating with other caregivers for support. If you would like to assist us in moderating the boards, please fill out our application at: Moderator. Pat Ratcliff-Milanese Mary C. Fridley Or click on this link: Holiday Articles Some articles you might want to read or revisit for this time of the year are as follows: (More articles are listed in last months' newsletter which you will find in our archives).
NEW CAREGIVING ARTICLES AT THE SITE Did You Forget To Say Goodbye? By Ridgely Goldsborough Sharing The Holidays When A Loved One Is In A Nursing Home by ARA Content Trouble Sleeping? Insomnia Cures Are Here! Dave Turo-Shields Controlling Our Anger Before It Controls Us by Dr. Ida Greene If you are interested in submitting an article(s) please go to: Submit. You will find a form for submitting your article, bio/profile, copyright permissions, etc. Please review our guidelines for acceptance, submit and we will notify you upon acceptance. ~ The Quality of Mercy An elementary schoolteacher asked her students to describe in a sentence, “What is love?” The teacher received many humorous and touching answers, yet the one that moved her the most was: “Love is what's in the room with you at Christmas if you stop opening presents and listen.” Copyrighted by Alan Cohen Alan Cohen, M.A., is the author of 20 popular inspirational books and tapes, including the best-selling The Dragon Doesn't Live Here Anymore and the award-winning A Deep Breath of Life. Alan's newest release "Why Your Life Sucks" can be purchased from his web site and most books stores. To request a free catalog of Alan's books, tapes, seminars, and life-transforming Mastery Training in Maui, phone 1 800 568-3079, email admin@alancohen.com, or write P.O. Box 835, Haiku, HI 96708. Alan's syndicated column, From the Heart, appears in new thought magazines internationally. Registration is now open for Last Acts’ December 11 Partner call, “Last Acts Partners: Honoring our Achievements, Charting Our Future Together.” Last Acts National Program Director, Karen Kaplan, will host the call, which begins at 11:00 a.m. EST. Dr. Kaplan will discuss with Partners the merger of Last Acts and Partnership for Caring into Last Acts Partnership. Dr. Kaplan will be joined by Judith Peres, Last Acts Partnership’s Vice President for Policy and Advocacy and Mary M. Meyer, Last Act Partnership’s Vice President for Constituent and Consumer Affairs. Additionally, hear from two Last Acts Partners who have already joined Last Acts Partners as “founding” members and learn about your critical role in the future of end-of-life care in America and how you can strengthen your voice in this new organization. ~ The consumer informational booklet, “Medicare Hospice Benefit,” is now available in large print and regular type editions at the CMS Web site and by ordering from the CMS warehouse. Updated in July 2003, this booklet may be downloaded at no charge or ordered in bulk. To download, please visit www.medicare.gov/Publications and search for “hospice.” If you have questions about placing a publications order, contact the CMS warehouse at: mailpubs@cms.hhs.gov. ~ Family Caregiver Alliance announces the release of its new publication, “Handbook for Long-Distance Caregivers,” a guide for families and friends caring for ill or elderly loved ones. The booklet serves as a roadmap for families new to the challenges of caring from afar for those affected by chronic or disabling health conditions. The Handbook is available in print by sending $5.00 to Family Caregiver Alliance, 600 Market Street, Suite 600, San Francisco, CA 94104, or download for free at the FCA Web site, at: handbook: ~ Washington State's Department of Social and Health Services is making available free caregiver kits containing lists of available resources and tips for working caregivers. Kits can be obtained by calling 800/422-3263. More information about the program KITS: ~ It is vitally important for caregivers and carerecipients keep abreast of all the new legislation and how they can best benefit from it. It is very detailed so it will be necessary to find out what areas the recipient is no longer eligible in. This summary can be found by downloading it in pdf form at: Summary. ~ This support program is a free, confidential program, which addresses the concerns one has when living and caring for a loved one who is ill. The group generally consists of 6-10 individuals who come together to share their experiences and to learn tools for stress and relaxation management, education and communication. This is a funded program so the caregiver has no costs at all. For further Information please contact Dante Tipiani @ 212.844.1713 or by email: DTipiani@chpnet.org ~ Based on years of experience of caring for individuals in their homes, Bill and his wife as written this free guide for family caregivers. The senior citizen demographics is a growing population all over the world of which many wish to remain at home when they need care. This guide will help both the families in need of finding a caregiver and also improve the quality of service given by the caregivers in a more organized and stress-free environment. Bill is offering his ebook guide for FREE to everyone. It is downloadable and Bill can email it to you in a zip format. William E. Blake Email: blakepublishing2000@yahoo.com ; www.blakepublishing.com ~ The Kaiser Family Foundation has introduced an online database, with information on Medicaid benefits in the 50 states, DC, and the U.S. territories. Information provided is comprehensive, with information about benefits covered by each state, for what populations the benefits are available, and the limitations, co-payments and payment rules that apply to the benefits. The database is searchable by Medicaid benefit as well as by state. Database ~ Hands & Voices is a parent driven, non-profit organization dedicated to providing support to families with children who are deaf or hard of hearing. The organization is considered to be non-biased about communication methodologies and promotes the belief that families will make the best choices for their child if they have access to good information and support. Hands & Voices membership includes families who communicate manually and/or orally. From American Sign Language to cochlear implants, the organization represents people from all different approaches to and experiences with deafness or hearing loss. Hands & Voices has local chapters comprised mainly of parents along with professionals, and if you're interested in learning more about a Hands & Voices group in your area, just contact them via the following web site for more information: http://www.handsandvoices.org/ ~ NAMI, the nonprofit organization for those concerned with severe mental illness, is rolling out a multi-year national campaign to increase access to mental health treatment by changing public priorities and policies at all levels of government. Reading materials, discussion groups, book reviews, local support groups, suggested actions to take and a referral service are all on the NAMI site. Some features require a full membership. Go to: NAMI ~ “Lean on Me: Support and Minority Outreach for Grandparents Raising Grandchildren” is now available from AARP. The report addresses the unique issues that this group of caregivers face, including the financial, legal, health, housing, education, respite care, child-rearing discipline, rules, boundaries, family communication and relationships, special needs of grandchildren and social isolation. The report is available at: Grandparents ~ Family Caregiver Alliance (FCA) has published an excellent series of fact sheets in Spanish for caregivers of people with Alzheimer’s disease, stroke, Parkinson’s disease or other chronic disorders. These easy-to-read fact sheets contain caregiving tips and strategies, as well as information on a range of topics, including specific health conditions, legal issues and end-of-life planning. 17 fact sheets are available free on the FCA website at http://www.caregiver.org ~ On 9/30, the Senate Veterans’ Affairs Committee voted unanimously to approve a bill (S. 1156) to extend long-term care services for veterans and authorize related funds for several health care facilities. The bill expands benefits related to non-institutional extended care and services such as hospice for eligible veterans. The legislation also authorizes the Department of Veterans Affairs secretary to award contracts to private health care facilities to provide nursing home or adult day health care to eligible veterans. To view a summary, the full text, and status information, enter the bill number: S. 1156 on the U.S. Congress’ Thomas Web site at: http://thomas.loc.gov. ~ New Resource on Palliative Care The National Alliance for Caregiving and New York City based Friends and Relatives of Institutionalized Aged have created a booklet to help family caregivers advocate for palliative care on behalf of relatives in long-term care settings. The 16-page publication, entitled “Palliative Care: Complete Care Everyone Deserves,” describes who can benefit from palliative care, provides advice on how to obtain such care, and includes a list of related resources. For more information go to www.caregiving.org/care.pdf ~ I just finished skimming through a wonderful new resource available free on line from SAFE (Stroke Awareness for Everyone), a Stroke Caregivers Handbook, written by Joyce Dreslin based on the shared experiences of many caregivers in an Internet support group. The book has chapters on understanding the medical side of a stroke, what to expect in acute care and rehab, how to adjust to home, and how to select a nursing home. Written in a down-to-earth manner, the 40+ page book is filled with frank discussions of issues like depression, incontinence, seizures, and getting help from others, as well as care for the caregiver.You can download it at www.strokesafe.org ~ “Fidelity, Wisdom and Love: Patients & Proxies in Partnership” is a new, innovative and comprehensive resource that helps people institute effective advance care planning before a crisis occurs. It can be used by individuals, in workshops sponsored by secular or religious groups, and by agencies and institutions that serve the needs of seniors. The resource comes in two parts: a user-friendly workbook and an engaging 12-minute video. The workbook features a practical, step-by-step guide on how to appoint and how to be a proxy decision-maker, plus an interactive section that contains four scenarios, representing classic end-of-life disease trajectories from cancer to Alzheimer’s. The video, featuring Kathleen Chalfant, star of “WIT,” and her husband, uses several of the workbook scenarios to show how one couple explore their own feelings and reactions about end-of-life care. This video is valuable and reassuring, particularly for people who may find the thought of such discussions difficult. If you would like to order copies of this resource, please call (860) 828-2976 or visit the Web site listed below. All proceeds will go to the Division of Medical Ethics of Weill Medical College of Cornell University. To learn more about this resource and to order copies, go to: http://isp-1.hartforddirect.com/fwl ~ Quotes Faith Faith is a gift of spirit that allows the soul to remain attached to its own unfolding. When faith is soulful, it is always planted in the soil of wonder and questioning. It isn't a defensive and anxious holding on to certain objects of belief, because doubt, as its shadow, can be brought into a faith that is fully mature. Thomas Moore, "Care of Soul" Anyone can sympathize with the sufferings of a friend, but itrequires a very fine nature to sympathize with a friend's success. Oscar Wilde A man may fulfill the object of his existence by asking a question he cannot answer, and attempting a task he cannot achieve. Oliver Wendell Holmes Excellence is the eternal quest. We achieve it by living up to our highest intellectual standards and our finest moral intuitions. In seeking excellence take life seriously--but never yourself! Arthur Schlesinger, Jr. Reach high, for stars lie hidden in your soul. Dream deep, for every dream precedes the goal. Pamela Vaull Starr It is not the strongest of the species that survive, nor the most intelligent, but the one most responsive to change. Charles Darwin Many persons have a wrong idea of what constitutes true happiness. It is not attained through self-gratification but through fidelity to a worthy purpose. Helen Keller Life's greatest happiness is to be convinced we are loved. Victor Hugo Depend not on another, but lean instead on thyself...True happiness is born of self-reliance. The Laws Of Manu This is just something I wrote, it may only make sense to me but I wanted to share it. Writing things down really seems to help me through these times. About My Mom For as long as I can remember it was your hands that healed me Daria A businessman who needed millions of dollars to clinch an important deal went to church to pray for the money. By chance he knelt next to a man who was praying for $100 to pay an urgent debt. The businessman took out his wallet and pressed $100 into the other man's hand. Overjoyed, the man got up and left the church. The businessman then closed his eyes and prayed, "And now, Lord, that I have your undivided attention..." ~ If you've got melted chocolate all over your hands, you're eating it too slowly. ~ A woman's husband dies. He had $20,000 to his name. After everything is done at the funeral home and cemetery, she tells her closest friend that there is no money left. ~ THAT'S IT FOR THIS ISSUE Subscribe: empoweringcaregivers-subscribe@yahoogroups.com REGARDING THE FORWARDING OF THE NEWSLETTER: Please do not forward this letter or subscribe anyone if they have not given you permission. We would like you to share it with others, but we do not want those who are not open to receiving it to be subjected to your forwarding it without their express permission. Thank you. DISCLAIMER: The Empowering Caregivers Site and the Empowering Caregivers newsletter contain views, opinions, statements, and recommendations of third party individuals, writers, advertisers and organizations. Empowering Caregivers/www.care-givers.com does not represent or endorse the views, accuracy or reliability of any advice, opinion, statement, product or service displayed or distributed on this web site. You acknowledge that any reliance upon such opinion, advice, statement or information shall be at your sole risk. The information provided by Empowering Caregivers / www.care-givers.com is for educational purposes only and should not be treated as medical advice. Nothing contained on Empowering Caregivers/www.care-givers.com is intended to be for medical diagnosis or treatment or a substitute for consultation with a qualified healthcare professional. In no event will Empowering Caregivers / www.care-givers.com, its affiliates, partners, agents, or contractors be liable to you for any damages or losses resulting from or caused by Empowering Caregivers / www.care-givers.com and its services, including use of the community message boards and chat rooms, free email, free web pages, content (including articles, stories, news) or any errors or omissions in ts content, even if advised of the possibility of such damages. December 1, 2003 Publisher & Editor: GAIL R. MITCHELL- DISCLAIMER: The Empowering Caregivers Site and the Empowering Caregivers newsletter contain views, opinions, statements, and recommendations of third party individuals, writers, advertisers and organizations. Empowering Caregivers/www.care-givers.com does not represent or endorse the views, accuracy or reliability of any advice, opinion, statement, product or service displayed or distributed on this web site. You acknowledge that any reliance upon such opinion, advice, statement or information shall be at your sole risk. The information provided by Empowering Caregivers / www.care-givers.com is for educational purposes only and should not be treated as medical advice. Nothing contained on Empowering Caregivers/www.care-givers.com is intended to be for medical diagnosis or treatment or a substitute for consultation with a qualified healthcare professional. In no event will Empowering Caregivers / www.care-givers.com, its affiliates, partners, agents, or contractors be liable to you for any damages or losses resulting from or caused by Empowering Caregivers / www.care-givers.com and its services, including use of the community message boards and chat rooms, free email, free web pages, content (including articles, stories, news) or any errors or omissions in ts content, even if advised of the possibility of such damages.
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