{"id":3377,"date":"2010-11-23T12:00:00","date_gmt":"2010-11-23T12:00:00","guid":{"rendered":"https:\/\/care-givers.com\/articles\/caregiving-to-elders-issues-and-challenges\/"},"modified":"2021-06-22T21:06:18","modified_gmt":"2021-06-22T21:06:18","slug":"caregiving-to-elders-issues-and-challenges","status":"publish","type":"post","link":"https:\/\/care-givers.com\/articles\/caregiving-to-elders-issues-and-challenges\/","title":{"rendered":"Caregiving to elders:  Issues and challenges"},"content":{"rendered":"<div class=\"post-content\"><p>ABSTRACT:<\/p>\n<p>The number of old people, who are 60 years and above, is increasing in<br \/>\nthe populations throughout the world. Even among the old population,<br \/>\npersons who are 80 years and above, called the \u2018oldest old\u2019 are growing<br \/>\nfaster. Old age is associated with frailty, disability and disease.<br \/>\nHearing and vision impairments, cardio vascular diseases, osteoporosis,<br \/>\nstroke and Alzheimer\u2019s disease are some of the major diseases related<br \/>\nto old age. The growing number of older individuals in a society<br \/>\nnecessitates the need for long term health care. The family is the<br \/>\nimmediate caregiving institution and a sick elderly person increases<br \/>\nthe burden of the family. Formal caregiving has not yet evolved in<br \/>\nIndia as in developed countries. This paper aims to analyze the needs<br \/>\nfor elderly caregiving in the twenty first century, the availability of<br \/>\nformal and informal caregivers, the problems of the family caregivers<br \/>\nand the roles of communities and governments to enhance the level of<br \/>\ncaregiving to growing elderly population.<br \/>\nCaregiving<br \/>\nCaregiving is a noble task but at the same time caring for a loved one<br \/>\nis always a stressful and frustrating one. Care may be needed for a<br \/>\nshorter or longer duration of time depending on the condition of the<br \/>\ncare recipient. Short term care does not have much significance and<br \/>\ncaregiving becomes a social issue when it is required for a long time<br \/>\nfor a person who is chronically ill or disabled. The care recipient may<br \/>\nbe anybody \u2013 a child, an adult or an elderly person of any gender.<br \/>\nChronic illness or accident might have necessitated caregiving.<br \/>\nCaregiving to a child is different from that of providing care to a<br \/>\nmiddle aged or an elderly patient.<\/p>\n<p>Caregiving includes helping the patient in the activity of daily living<br \/>\nlike toileting, bathing, dressing, feeding, walking, administering<br \/>\nmedicines, nursing and other related activities. The caregiver may also<br \/>\nbe expected to assist the patient in financial and legal matters. There<br \/>\nare two types of caregiving \u2013 formal and informal. Formal caregiving is<br \/>\na paid service provided by health professionals like doctors, nurses<br \/>\nand attendants of hospitals and some social welfare organizations.<br \/>\nInformal caregiving refers to unpaid services rendered by family<br \/>\nmembers, friends and relatives. Caregivers are falling under two<br \/>\ncategories \u2013 primary and secondary. Primary caregivers are those who<br \/>\nare mainly responsible for providing care to the patient and those who<br \/>\nsupport the primary caregivers in their care giving activities are<br \/>\ncalled secondary caregivers. If the wife is a caregiver for her sick<br \/>\nhusband, she is the primary caregiver and her sons, daughters-in-law,<br \/>\ngrandchildren, friends and relatives who assist her are the secondary<br \/>\ncaregivers.<br \/>\nPopulation Aging<br \/>\nPeople are living longer than their previous generations throughout the<br \/>\nworld due to increase in life expectancy. The absolute number and<br \/>\nproportion of people who are aged 60 and above are increasing in the<br \/>\nworld population. This is the result of demographic transition from<br \/>\nhigh birth rate, high death rate and shorter life expectancy to low<br \/>\nfertility rate, low mortality rate and longer life expectancy.<\/p>\n<p>Fall in the birth rates increased the proportion of old people and<br \/>\ndeclining mortality rate increased the number of old persons in the<br \/>\npopulation. Developing countries have been aging for centuries but this<br \/>\nphenomenon is happening in developing countries recently and at a<br \/>\nfaster pace.<\/p>\n<p>The United Nations declares persons who are 60 years and above as old<br \/>\nand estimates that there will be around 2 billion old people in the<br \/>\nworld by 2050, 80 percent of whom will live in developing countries.<br \/>\nThe old population itself is aging and the persons who are 80 years and<br \/>\nabove, called the \u2018oldest old\u2019 are aging faster than any other age<br \/>\ngroup. Major proportions of elderly persons comprise women in almost<br \/>\nall countries. The majority of them are widows and their numbers grow<br \/>\nas their age increases.<br \/>\nOld age and health<br \/>\nOld age is associated with chronic illness, frailty, disability and<br \/>\ndependence. All forms of functional impairments increase with age. The<br \/>\nmajor diseases relating to old age are cataract, hearing impairment,<br \/>\narthritis, diabetes, osteoporosis, heart disease, cancer, stroke,<br \/>\nAlzheimer\u2019s disease and neurological disorders. Depression, anxiety and<br \/>\nsuicide tendencies are also found to be common among the oldest old.<br \/>\nWith the increase in the old population, the chances of rise in the<br \/>\ndementia patients also increase. The health problems of the elderly are<br \/>\ndifferent from those of younger persons and most of the diseases are<br \/>\nchronic (Sitaram Gupta, M S Rathore and S S Shekhawat, 2009). The old<br \/>\npersons require life long treatment and an elderly person with chronic<br \/>\nillness becomes the matter of financial and emotional burden on the<br \/>\nfamily.<\/p>\n<p>Old persons have to depend on others due to poor health, disability and<br \/>\neconomic situation. Old people have fear for their future and<br \/>\ndependency (Dias A and Patel V, 2009). More number of elderly persons<br \/>\nin a society puts pressure on the family and governments to provide for<br \/>\ntheir welfare.<\/p>\n<p>Availability of formal care in the public health sector is very scarce<br \/>\nfor elders and geriatric medicines and specialist health services for<br \/>\nold people are not well established in India.<br \/>\nChallenges of Caregiving to elders<br \/>\nThe elders need more care when their vitality is reduced due to<br \/>\nweakness and sickness (Carol Bradley Bursack, 2009). Family plays an<br \/>\nimportant role in providing health care to the needy old persons.<br \/>\nFamily remains the only source of care and support for the vast<br \/>\nmajority of Indian elders (Dias A and Patel V, 2009). The caregivers<br \/>\nare normally the spouses and majority of the caregivers in our society<br \/>\nare women since women have the time, patience, tolerance, nursing<br \/>\nability and helping tendency. The family members who provide caregiving<br \/>\nto ill or disabled relatives are great assets to the society (Richard<br \/>\nSchultz and Scott R. Beach, 1999). The illness of old people cannot be<br \/>\ncured and only palliative care can be provided. Due to frailty, the<br \/>\ndependence of old persons increases with age and caregiving to them<br \/>\nwill not be so easy. When the old person is suffering from disability<br \/>\nor dementia, caregiving becomes very difficult and complicated.<br \/>\nMajority of dementia patients are cared at home by a family member and<br \/>\nthe mental health of the care givers deteriorates in due course (Shaji<br \/>\nKS et al, 2009).<\/p>\n<p>Poverty is one of the major problems for caregiving to elders.<br \/>\nUnavailability of affordable health care makes it difficult for poor<br \/>\nfamilies to provide adequate care for old people. Poor elders who do<br \/>\nnot have children will have to depend on relatives and friends for<br \/>\nsurvival and support.<\/p>\n<p>If the caregiver is a spouse, child or somebody who loves the elderly<br \/>\npatient, witnessing the suffering of the patient will be a very sad<br \/>\nexperience for the caregiver. The sorrow and the inability to mitigate<br \/>\nthe suffering of the patient will increase the frustration and affect<br \/>\nthe caregiver psychologically. The burden of woman caregiver will be<br \/>\ntremendous as she has to balance her time between the elderly person<br \/>\nand the rest of the family.<\/p>\n<p>Providing assistance to the old person in the activities of daily<br \/>\nliving like toileting, bathing, dressing etc, may be an unpleasant<br \/>\nexperience affecting the self esteem of the caregiver. Caring an<br \/>\nelderly person is a very stressful job. Due to advanced age, the<br \/>\ncognitive abilities of the elders will be on decline and their demands<br \/>\non the caregivers will be unbearable. At times they may abuse the<br \/>\ncaregiver and behave irrationally which will add to the mental agony of<br \/>\nthe caregiver. In some cases, the old couple may live alone and<br \/>\ncaregiving by the elderly spouse will be very tiresome. Sleeplessness,<br \/>\nuntimely intake of food, attending the visitors and providing timely<br \/>\ncare will result in fatigue and depression.<\/p>\n<p>The caregiver is likely to be affected psychologically and<br \/>\nphysiologically due to pressure, exhaustion, stress and strain of<br \/>\ncaregiving. Depression and anxiety are the outcomes of the stress faced<br \/>\nby the caregiver. The possibility of the caregiver suffering from<br \/>\ninfectious sickness cannot be ruled out. In order to provide proper<br \/>\ncaregiving, the caregiver has to take adequate measures to keep his<br \/>\nbody and mind fit to meet the challenges of caregiving To be effective<br \/>\ncaregiver, one has to understand the disease, the patient and manage<br \/>\nthe time effectively. Regular well planned breaks from caregiving<br \/>\nactivities will definitely ease the pressure. The caregiver also should<br \/>\ntake the help of other family members, friends and relatives. By<br \/>\nignoring his own health for the sake of caregiving, the caregiver is<br \/>\nlikely to become patient himself.<br \/>\nFuture of caregiving to elders<br \/>\nThe average life expectancy of Indians is increasing steadily from 32<br \/>\nyears at the time of independence to 63 years in 2001. As per the<br \/>\nestimate of United Nations, the life expectancy of males will be 68.8<br \/>\nyears and females will be 72.1 in the period 2020-25. The population of<br \/>\nold persons in India was 12 million in 1901. It increased to 76 million<br \/>\nin 2001 and is expected to be 326 million in 2050.<\/p>\n<p>Growing number of elderly persons will increase the demand for<br \/>\ncaregiving dramatically in the coming decades. Joint family system is<br \/>\ndisintegrating and one child families and nuclear families have become<br \/>\ncommon nowadays. Migration of younger generations, women employment,<br \/>\nmodernization and globalization resulted in shortage of care givers to<br \/>\nthe elderly. Informal or family caregiving cannot be sustained in<br \/>\nfuture and due to the social changes, it will be difficult to find<br \/>\nfamily members for caregiving except the living spouse.<\/p>\n<p>Elder abuses and abandoning the parents are increasing and only a small<br \/>\nproportion of children consider it their duty to look after their old<br \/>\nparents. The relationship between parents and children deteriorates<br \/>\nover a period of time due to inter-personal conflicts and difference of<br \/>\nopinions. When the parents become old and sick, they are neglected and<br \/>\ninsulted. The number of such neglected parents likely to increase<br \/>\nsignificantly in the future.<br \/>\nInterventions<br \/>\nFamily is the prime social institution to care the elders. However,<br \/>\nwhen there will not be sufficient family members, it becomes imperative<br \/>\nto involve community members in caregiving activities. The family<br \/>\nmembers should change their negative attitude towards old people and<br \/>\nwillingly offer their services in providing care to the needy elders.<br \/>\nCharity begins at home and if the families change for the better, then<br \/>\nthe entire community in total is transformed.<\/p>\n<p>The children who live away from their parents should make adequate<br \/>\narrangements to provide formal care to their parents at the time of<br \/>\nneed. Young children should be taught about Aging, the past<br \/>\ncontributions of old people and the importance of<br \/>\ncaring them. It is important to create positive image of elders in the<br \/>\nminds of the younger generations.<\/p>\n<p>The number of caregivers, both formal and informal, will have to be<br \/>\nincreased in future. It would be appropriate if the educational<br \/>\ninstitutions take initiatives to train students for voluntary care<br \/>\ngiving. Arranging regular visits of students to old age homes will<br \/>\nenable the younger generations to understand the plight of old persons.<br \/>\nEducational institutes should organize seminars and conferences<br \/>\nregularly on the subject of elderly and caregiving needs to create<br \/>\nawareness among the students.<\/p>\n<p>To reduce the financial burden of poor people, the governments should<br \/>\nprovide free or subsidized medical care for old persons. Old age homes<br \/>\nare spreading throughout India, both in urban and rural areas. However,<br \/>\nthey are not geared to provide long term care for old people.<br \/>\nGovernment agencies and NGOs who run old age homes may consider adding<br \/>\ncaregiving facilities with suitable health care professionals.<\/p>\n<p>Similar to old age homes, Caregiving Centres can be started throughout<br \/>\nIndia by government and NGOs. Leading private hospitals and corporate<br \/>\ncompanies can join together and establish care centres which can<br \/>\nprovide long term care at affordable cost or free of charge for old<br \/>\npersons and other sections of the society.<\/p>\n<p>Both government and private hospitals should have special geriatric<br \/>\nwards with professionals trained to treat old persons. Such wards<br \/>\nshould have facilities to provide long term care for old patients<br \/>\nwithout the need for any family member to be with the patient.<\/p>\n<p>Caregiving courses and trainings are offered by certain educational<br \/>\ninstitutions in some of the major cities at present. However, medical<br \/>\ncolleges and similar institutions should introduce caregiving study<br \/>\ncourses on a large scale and raise the quality of caregiving education<br \/>\nto the level of nursing by improving the standard of curriculum and<br \/>\ntraining. This will enable more young persons choose caregiving as<br \/>\ntheir career.<\/p>\n<p>Old persons, as far as possible, can take care of themselves by forming<br \/>\nassociations and clubs. Old people, especially \u2018young old\u2019, who are<br \/>\naged between 60 and 70 and active, should take the lead to form<br \/>\nsuitable networks to provide care to the fellow old persons.<\/p>\n<p>In future, almost every household will have one or two old persons who<br \/>\nmay require long term health care. When the caregiving need arises, the<br \/>\ncaregivers from different families can form informal networks, assess<br \/>\ndifferent needs of different patients, consolidate the requirements and<br \/>\nshare the total care giving tasks among themselves. Such community<br \/>\ncaregiving arrangements will avoid duplication of efforts, save time<br \/>\nand ease the pressure.<br \/>\nConclusions<br \/>\nCaregiving is an act of a civilized and cultured human being.<br \/>\nRespecting elders and taking care of them is part of our tradition. By<br \/>\ndoing so, we set an example for others to follow and also teach our<br \/>\nchildren about the importance of care giving. Caregiving is a rewarding<br \/>\nexercise and gives us an opportunity to pay back to the elders against<br \/>\nwhat they have given to us.<\/p>\n<p>It is our duty to provide physical, emotional, social and economic<br \/>\nsecurity to old people and ensure that they spend their last phase of<br \/>\nlife happily with dignity and satisfaction. We have to commit ourselves<br \/>\nfor this noble task and also guide the succeeding generations to follow<br \/>\nus.<\/p>\n<p>Bibliography:<\/p>\n<p>Access Economics Pty Ltd. Dementia in the Asia<br \/>\nPacific Region: the Epidemic is here. Report for Asia Pacific Members<br \/>\nof Alzheimer&#8217;s Disease International, 21 September 2006.<\/p>\n<p>Amelia Fletcher. Dealing with a parent who<br \/>\nAbandons Accepted Standards of Personal Hygiene. Caregiver\u2019s Home<br \/>\nCompanion. December 24, 2003.<\/p>\n<p>Aniruddha Malpani, Dr. Caregiving: Taking Care<br \/>\nof Elders. 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Department of Human<br \/>\nDevelopment and Family Studies, University of Missouri. Reviewed July<br \/>\n1997.<\/p>\n<p>Jayanthi Iyengar. How I Cope? Different Land,<br \/>\nsame issues: Lessons learned in an Indian care giving home. Caregiver\u2019s<br \/>\nhome companion, December 24, 2003.<\/p>\n<p>J.K. Kilcolt et al. Spousal caregivers of<br \/>\nDementia victims: Longtitudinal changes in immunity and health.<br \/>\nPsychomatic Medicine, 53:345-362, American Psychomatic Society, 1991.<\/p>\n<p>Kinsella, Kevin and David R Philips. Global<br \/>\nAging: The Challenge of Success. Population Reference Bureau,<br \/>\nPopulation Bulletin Vol. 60, No. 1, March 2005.<\/p>\n<p>Kinsella, Kevin and Victoria A. Velkoff. An<br \/>\nAging World: 2001. U.S. Census Bureau, Series P95\/01-1, U.S. Government<br \/>\nPrinting Office, Washington DC, 2001<\/p>\n<p>Lalitha, K., and D. Jamuna. 2004. Memory<br \/>\nStatus in the Elderly and its correlates: An Intervention Study. Indian<br \/>\nJournal of Gerontology, 2004, Volume 18, No. 1, pp 34-57<\/p>\n<p>Mekeshia Bates. Caregiving and the Elderly.<br \/>\nRichard Schulz, Ph.D. and Scott R. Beach,<br \/>\nPh.D. Caregiving as a Risk Factor for Mortality: The Caregiver Health<br \/>\nEffects Study. The Journal of American Medical Association (JAMA), Vol.<br \/>\n282, No. 23, December 15, 1999.<\/p>\n<p>Shaji K.S., George R.K., Prince M.J. and Jacob<br \/>\nK.S. Behaviroul symptoms and caregiver burden in dementia. Indian<br \/>\nJournal of Psychiatry, Volume 51, Issue 1, Page 45-47, 2009.<\/p>\n<p>Sitaram Gupta, M.S. Rathore and S.S.<br \/>\nShekhawat, 2009. A Cross Sectional Study of Health Profie Among Rural<br \/>\nElderly of North-West Rajasthan, Indian Journal of Gerontology, 2009,<br \/>\nVol. 23, No. 1, pp 26-31<\/p>\n<p>Swapna Kishore. For those new to caregiving.<br \/>\nCaregiver\u2019s link. October 4, 2010<\/p>\n<p>US Department of Health and Human Services<br \/>\n(DHHS). Informal Caregiving: Compassion in Action. June 1998.<\/p>\n<p>Victoria A. Velkoff and Valerie A. Lawson.<br \/>\nGender and Aging: Caregiving. US Department of Commerce, Economics and<br \/>\nStatistics Admninistration, Bureau of the Census. IB 98-3. 1998.<\/p>\n<p>Windy Force, GNP. Taking Loving care of your<br \/>\nAging Parents. University of Virginia Health System. Last modified<br \/>\nApril 10, 2003.<\/p>\n<p>World Health Organisation, Aging and Health<br \/>\nProgramme. Growing Older \u2013<\/p>\n<p>Staying Well. Aging and Physical Activity in<br \/>\nEveryday life. WHO\/HPR\/AHE\/<\/p>\n<p>98.1, Geneva, 1998<\/p>\n<p>&nbsp;<\/p>\n<p>R. Narayanasamy<br \/>\nnarayana91@yahoo.com<br \/>\nCaregiving to the elderly<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>This article analyses the caregiving needs for the growing elderly population and also explains the difficulties of caregiving<\/p>\n","protected":false},"author":5,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5,6],"tags":[],"ppma_author":[934],"class_list":["post-3377","post","type-post","status-publish","format-standard","hentry","category-caregiver-issues","category-eldercare"],"authors":[{"term_id":934,"user_id":0,"is_guest":1,"slug":"narayanasamy","display_name":"R. Narayanasamy","avatar_url":"https:\/\/secure.gravatar.com\/avatar\/?s=96&d=mm&r=g","1":"","2":"","3":"","4":"","5":"","6":"","7":"","8":""}],"_links":{"self":[{"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/posts\/3377","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/comments?post=3377"}],"version-history":[{"count":3,"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/posts\/3377\/revisions"}],"predecessor-version":[{"id":4250,"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/posts\/3377\/revisions\/4250"}],"wp:attachment":[{"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/media?parent=3377"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/categories?post=3377"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/tags?post=3377"},{"taxonomy":"author","embeddable":true,"href":"https:\/\/care-givers.com\/articles\/wp-json\/wp\/v2\/ppma_author?post=3377"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}