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Off-Line Resources
Illness, Diseases, Disabilities

Adventures in Movement for the Handicapped (AIM)
945 Danbury Road, Dayton, OH 45420, 1-513-294-4611, For the disabled and their family caregivers. AIM is a specialized movement education program taught to music, and used as a recreational and rehabilitation tool in adult day care center, nursing homes, etc. Taught in schools, universities and for groups.

AIDS
AIDS Information Hotline 1- 800 342-2437 
AIDS Caregiver Support Network 206-937-3368
Body Positive (AIDS) 800-566-6599
People with AIDS Coalition 800-828-3280
Ryan White National Teen Education Program 
800-933-KIDS
Teens Teaching AIDS Prevention 800-234-8336

ALLERGY
Asthma and Allergy Foundation of America 800-7-ASTHMA

ALTERNATIVE (INTEGRATIVE) MEDICINE
American Association of Oriental Medicine 610-266-1433
Homeopathic Education Services 510-649-0294
American Assn. of Naturopathic Physicians 206-298-0126

Alzheimer's Association
1-800-272-3900, provides nationwide referrals to local chapters, services and support groups

Alzheimer's Disease Education and Referral Center 1-800-438-4390, provides free information on Alzheimer's and other dementia related diseases

American Brain Tumor Association
1-800-886-2282, offers referrals to doctors, support groups and publications

American Kidney Fund 1 - 800 - 638-8299 

American Lung Association
1-800-586-4872, provides information on all aspects of lung diseases and local referrals for medical care, smoking cessation and support groups

American Lupus Foundation
1-800-331-1802 for information packet

American Parkinson's Disease Association
1-800-223-3732, provides information, publications and local referrals

Arthritis Foundation
1-800-283-7800, provides free information and nationwide referral to local chapters and support groups

Association For Retarded Citizens (US) 1 - 800 - 433-5255 

Asthma and Allergy Foundation of America
1-900-727-8462, information referrals to other hotlines and publications

American Cancer Society
1-800-227-2345, provides free information, answers personal questions, publications and referrals

American Cancer Society Hotline
1-800-ACS-2345, provides local referrals 

American Heart Association, National Center and Stroke Connection  1-800-242-8721 or 1-800-553-6321, provides free publication

American Diabetes Association
1-800-868-7888, provides information and local referrals

AT &T Special Needs Center 1 - 800 - 233-1222 

BIRTH DEFECTS
Association of Birth Defect Children, Inc. 800-313-2232
Cornelia De Lange Syndrome Foundation, Inc. 800-223-8355


BLOOD DISORDERS (see HEMATOLOGY)

BURNS
National Burn Victim Foundation 800-803-5879
Phoenix Society for Burn Survivors 800-888-BURN

CANCER

American Brain Tumor Association 800-886-2282
American Cancer Society 800-ACS-2345
                                  Cancer Care - (800) 813-HOPE

Cancer Information Services 800-4-CANCER
Candlelighters Childhood Cancer Foundation 
800-366-2223

Gilda's Club
195 W. Houston Street, New York, NY 10014 (212) 647-9700

Leukemia Society of America
1-800-955-4572, referrals to local chapters, publications and newsletter


Heartmates 800-9HM-3331

Lupus Foundation of America
1-800-558-0121, information, referrals to local chapters

National AIDS Clearinghouse
1-800-458-5231, information on clinical trials and funding sources, referrals, publications, sponsored by Centers for Disease Control

National AIDS Hotline
1-800-342-2437, counseling: referrals to lega, financial, medical resources, support groups, publications, sponsored by Centers for Disease Control

National Alliance of Breast Cancer Organizations
1-800-719-9154, information, support and publications

National Cancer Institute
9000 Rockville Pike, 31 Center Dr. - MSC 2580, Bethesda, MD 20892-2580 (301) 496-5583 or (800)-422-6237 or (800) 332-8615

National Coalition for Cancer Survivorship
1010 Wayne Ave., Silver Spring, MD 20910(301) 650-8868

People Against Cancer 800-NO-CANCER
Reach to Recovery (women's/breast cancer support services) 
800-ACS-2345
Skin Cancer Foundation 800-SKIN-490
Susan G. Komen Breast Cancer Fdtn. 800-IM-AWARE
Y-Me National Breast Cancer Organization 800-221-2141

CARDIOLOGY
American Heart Association 800-242-1793
Coronary Club, Inc. 800-478-4255
Heartmates 800-9HM-3331

CEREBRAL PALSY
United Cerebral Palsy Association 800-USA-SUCP

CHILDREN'S CATASTROPHIC DISEASES
ALSACÐp;St. Jude Children's Research Hosp. 800-USS-JUDE
Children's Hospice International 800-242-4453

CRANIOFACIAL ABNORMALITIES
Children's Craniofacial Association 800-535-3643
Forward Face (craniofacial disorders) 800-FWD-FACE
National Association for the Craniofacially Handicapped 
800-332-2373

Cystic Fibrosis Foundation 1 - 800 - 344-4823 

Disability Information & Referral Service 1 - 800 - 255-3477 

Disabled Hotline-Direct Link
1-805-688-1603, provides information from 12,000 local organizations that offer services for the disabled.

National Association for Sickle Cell Disease 1 - 800 - 421-8453 

National Institute of Neurological Disorders and Stroke
1-800-352-9424, provides nationwide referrals to local centers and information on Alzheimer's, epilepsy, Parkinson's, stroke and other brain-related disorders.

National Easter Seal Society 1 - 800 - 221-6827 
National Spinal Cord Injury Hotline 1 - 800 - 526-3456 

The National Self-Help Clearinghouse
City University of New York,Room 620, 25 West 43rd Street,New York, New York 10036

DIABETES
American Diabetes Association 800-ADA-DISC
Diabetes Research Institution Fdtn. 800-321-3437
                             Juvenile Diabetes Foundation 1 - 800 - 223-1138 

DISABILITIES
Canine Companions for Independence 800-572-2275
Council of Citizens with Low Vision 800-733-2258
Disabled & Alone: Life Services for the Handicapped 
800-995-0066
National Easter Seal Society (children and adults with
disabilities) 800-221-6827
National Information Center for Children & Youth with
Disabilities 800-695-0285
Paws with a Cause 800-253-PAWS
Very Special Arts 800-933-VSA1

DYSLEXIA
International Dyslexia Association 800-ABCD-123

EPILEPSY
Epilepsy Foundation of America 800-EFA-1000

FAMILY
Family Caregiver Alliance 415-434-3388 
(CA. only 800-445-8106)
Family Service America 800-221-3726
National Family Caregivers Association 800-896-3650
Well Spouse Foundation 800-838-0879

GASTROENTEROLOGY
Celiac/Sprue Association/USA 402-558-0600
Crohn's and Colitis Foundation of America 
800-932-2423

GENETIC DISORDERS
Alliance of Genetic Support Groups 800-336-GENE
Beckwith-Wiedemann Support Network 800-837-2976
Fanconi's Anemia Research Fund 800-828-4891
HHT Foundation International (Osler-Weber-Rendu Syndrome)
800-448-6389
National Fragile X Foundation 800-688-8765
Neurofibromatosis, Inc. 800-942-6825
Prader-Willi Foundation 800-253-7993
Prader-Willi Syndrome Association 800-926-4797
Support Organization for Trisomy 18/13 (Soft 18/13) 
800-716-SOFT
Turner's Syndrome Society of the U.S. 800-365-9944
VHL Family Alliance 800-767-4VHL

HAND
Foundation for Hand Research and Education 
(treatment of upper extremities) 800-888-HAND

HEAD INJURY
Brain Injury Association 800-444-6443

HEADACHE
American Council for Headache Education 800-255-ACHE
National Headache Foundation 800-843-2256

HEALTH INFORMATION
ODPHP National Health Information Center 800-336-4797

HEARING IMPAIRED
Hear Now 800-648-HEAR
National Service Dog Center 800-869-6898
Paws with a Cause 800-253-PAWS
Self Help for Hard of Hearing People 301-657-2248 or (2249)
Telecommunications for the Deaf (assists low-income elderly 
with housing issues) 301-589-3786

HEART
American Heart Association 800-242-1793
Coronary Club, Inc. 800-478-4255
Heartmates 800-9HM-3331

HEMATOLOGY
Aplastic Anemia Foundation of America 800-747-2820
Histiocytosis Association of America 800-548-2758
National Cooley's Anemia Foundation 800-522-7222
National Hemophilia Foundation 212-219-8180
Sickle Cell Disease Association of America 800-421-8453

HEPATOLOGY
American Liver Foundation 800-GO-LIVER

HOME CARE
Oley Foundation for Parenteral and Enteral Nutrition 
800-776-OLEY

HOSPICE
Hospice Education Center 800-331-1620

HOUSING
Christmas in April 800-4-REHAB-9
Congregate Housing Services Program 800-245-2691

HUNGER
Second Harvest (network of food banks) 800-532-FOOD

HYPERTENSION
United Patients Association for Pulmonary Hypertension 
800-74-UPAPH

IMMUNOLOGY
Immune Deficiency Foundation 800-296-4433

INFANTS
La Leche League International (mother-to-mother support for 
breast feeding) 800-LA-LECHE

LEPROSY
American Leprosy Missions 800-543-3131

LUPUS ERYTHEMATOSIS
Lupus Foundation of America 800-558-0121

LYMPHOLOGY
International Association of Infant Massage 800-248-5432
National Lymphedema Network 800-541-3259

MENTAL HEALTH
National Alliance for the Mentally Ill 800-950-NAMI
National Depressive and Manic Depressive Association 
800-82-NDMDA
National Mental Health Association 800-969-6642
National Mental Health Consumers' Self-Help Clearinghouse 
800-553-4539

MENTALLY DISABLED
ARC (mental retardation and developmental disabilities) 
800-433-5255
National Down syndrome Congress 800-232-NDSC

METABOLIC DISORDERS
National Organization for Albinism and Hypopigmentation 
800-473-2310
Paget Foundation for Paget's Disease of Bone and Related
Disorders 800-23-PAGET
Wilson's Disease Association 800-399-0266

MOTHERS/BREAST FEEDING (see also INFANTS)

NEPHROLOGY
American Association of Kidney Patients 800-749-2257
American Kidney Fund 800-638-8299
National Kidney Foundation 800-622-9010

NEUROLOGICAL DISORDERS
American Parkinson Disease Association 800-223-2732
American Springomyelia Alliance Project 800-ASAP-282
Amyotrophic Lateral Sclerosis Association 800-782-4747
Batten's Disease Support and Research Association 
800-448-4570
Charcot-Marie-Tooth Association 800-606-CMTA
Families of S.M.A. (spinal muscular atrophy) 800-886-1762
Guardians of Hydrocephalus Research Fdtn. 800-458-8655
Huntington's Disease Society of America 800-345-4372
International Rett Syndrome Association 800-818-RETT
Multiple Sclerosis Association of America 800-833-4672
Myasthenia Gravis Foundation 800-541-5454
National Brain Tumor Foundation 800-934-CURE
National Multiple Sclerosis Society 800-FIGHT-MS
National Neurofibromatosis Foundation 800-323-7938
National Spasmodic Dysphonia Association 800-795-6732
National Spasmodic Torticollic Association 800-HURTFUL
Natl. Tay-Sachs Allied Diseases Association 800-906-8723
Natl. Tuberous Sclerosis Association 800-225-6872
Parkinson's Disease Foundation 800-457-6676 
Sturge-Weber Foundation 800-627-5482
Tourette Syndrome Association 800-237-0717
United Leukodystrophy Foundation 800-728-5483

NURSING
Visiting Nurse Associations of America 800-426-2547

OBESITY
Tops Club (weight control self-help assn.) 800-932-8677

OBSTETRICS & GYNECOLOGY
Endometriosis Association 800-992-3636
Positive Pregnancy and Parenting Fitness 800-433-5523

OPTHALMOLOGY (see also VISUAL IMPAIRMENT)
Glaucoma Foundation 800-452-8266
Glaucoma Research Foundation 800-826-6693
National Eye Care Project (medical eye care for elderly, 
especially economically in need) 800-222-EYES
Prevent Blindness 800-331-2020

ORTHOPEDICS
Osteogenesis Imperfecta Foundation 800-981-2663

ORHINOLARYNGOLOGY
Meniere's Network 800-545-HEAR
Vestibular Disorders Association 800-837-8428

OSTOMY
United Ostomy Association 800-826-0826

PARENTS
American Pseudo-Obstruction and Hirschprung's Disease 
Society 800-394-APHS
Depression After Delivery 800-944-4773
Parents Without Partners 800-637-7974
Pediatric Projects 800-947-0947
Tough Love International 800-333-1069

PHYSICAL FITNESS/EXERCISE
Aerobic and Fitness Foundation 800-BE FIT 86
American Council on Exercise 800-825-3636

PSYCHIATRY
American Association of Psychiatric Services for Children 
800-777-6910
Self-Abuse Finally Ends (self-injury program) 800-669-2426

National Organization for Rare Disorders
1-800-999-6673, provides information and local referrals. First request is free. A nonprofit clearinghouse 

National Rehabilitation Information Center and ABLEDATA
8455 Colesvileel Rd. Suite 935, Silver Springs, MD. 20910, 1-800-346-2742 -provides database info on equipment and home modification; referrals to local rehabilitation centers and organizations which provide help for the disabled. Federally-funded for fee organization.

National Spinal Cord Injury Association
1-800-526-3456, cpimse;omg: referrals to rehabilitation programs, clinics, equipment center, support groups and publications

Parkinson's Disease Foundation
1-800-457-6676, provides educational information, support group referral by zip code, and sponsors research

Y-Me National Breast Cancer Organization
1-800-221-2141, information, counseling, referrals to doctors and clinics, support for patients and partners, and publications

REHABILITATION
National Rehabilitation Info. Center 800-346-2742

RESPIRATORY DISEASES
Allergy and Asthma Network/Mothers of Asthmatics 800-878-4403
Cystic Fibrosis Foundation 800-344-4823

REYE'S SYNDROME
National Reye's Syndrome Foundation 800-233-7393

RHEUMATIC DISEASES
Arthritis Foundation 800-283-7800
Fibromyalgia Alliance of America 614-457-4222
National Sjogren's Syndrome Association 800-395-6772
Sjogren's Syndrome Foundation 800-475-6473
Spondylitis Association of America 800-777-8189

SCLERODERMA
Scleroderma Foundation 800-422-1113

SCOLIOSIS
Scoliosis Association 800-800-0669

SMOKING
Smokenders 800-828-4357

SPEECH & HEARING
National Association for Hearing and Speech Action 
800-638-8255
National Center for Stuttering 800-221-2483
National Stuttering Project 800-364-1677

SPINA BIFIDA
Spina Bifida Association of America 800-621-3141

SPINAL INJURY
National Spinal Cord Injury Association 800-962-9629

STRESS
American Institute of Stress 800-24-RELAX

STROKE
National Stroke Association 800-STROKES
Stroke Connection (American Heart Association) 
800-553-6321 

SUBSTANCE ABUSE
Rational Recovery Systems (alcohol, chemical, food 
dependencies) 800-303-CURE

SUPPORT GROUPS
Alliance of Genetic Support Groups 800-336-4363
Well Spouse Foundation (support for partners of chronically 
ill patients) 800-838-0879

THYROID
Thyroid Foundation of America 800-832-8321

TISSUE
National Marfan Foundation 800-862-7326

TRANSPLANTATION
Organ Transplant Fund 800-489-3863
Transplant Recipents International Organization 800-TRIO-386

UROLOGY
American Foundation for Urologic Disease 800-242-2383
American Prostate Society 800-678-1238
National Association for Continence 800-BLADDER
Simon Foundation for Continence 800-23-SIMON

VISUALLY IMPAIRED
American Council of the Blind/and Government Employees 
800-424-8666
American Foundation for the Blind 800-AFB-LINE
American Printing House for the Blind 800-223-1893
Braille Revival League 800-424-8666
Carroll Center for the Blind 800-852-3131
Council of Citizens with Low Vision 800-733-2258
Council of Families with Visual Impairment 800-424-8666
DB-Link (children/youth who are deaf/blind) 800-438-9376
Guide Dog Foundation for the Blind 800-548-4337
Guiding Eyes for the Blind 800-942-0149
In Touch Networks 800-456-3166
Independent Visually Impaired Enterprisers 800-424-8666
Lighthouse 800-334-5497
National Association for Parents of the Visually Impaired 
800-562-6265
National Association of Radio Reading Services 800-280-5325
Vision Foundation 800-852-3029
Visually Impaired Veterans of America 800-424-8666

WOMEN
National Black Women's Health Project 800-ASK-BWHP

© Copyright 1998 - 2000 by Gail R. Mitchell.. 

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© Copyright 1998 - 2000 by Gail R. Mitchell..


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